Wednesday, September 5, 2018

September 5th, 2018


                This most recent cycle of the immunotherapy clinical trial went a lot easier than the first two! I didn’t have a fever at all, and while my body temperature definitely elevated a little, it was only for an evening. All of the side-effects were greatly diminished, both in severity and duration, and a couple never materialized at all. I kept waiting for the figurative other shoe to drop but it never did. I’ll take it.

                We’re back home now and plan to be until the 19th, when I have my next set of scans. We’re hoping to ride some roller coasters and do a little camping and celebrate our birthday in the meantime. I’m also trying to exercise and stretch and whatever else I can do to recover some strength and hopefully not lose weight or maybe even gain a little.

Tuesday, August 28, 2018

August 28th, 2018


No treatment today. Several levels of things like bilirubin and some enzymes and I’m not sure what all were high today, some extremely so. As such I have a hydration backpack overnight and we’ll try again in the morning. Hopefully I can get the next cycle of treatment soon!

Monday, August 27, 2018

August 27th, 2018


We’re heading back into New York City tomorrow for round three of this clinical trial. Cycle two was far easier than the first go around, and I’m hoping that trend continues. We’re planning to stay in NYC about eight days or so, which will let me receive IV hydration as long as I need it. Hopefully that helps mitigate side-effects as well, which previously have included cold symptoms such as aches, a stuffy nose, and fever, along with a handful of other weird things like itching deep within my surgical scars. There’s a theory though that immunotherapy should include a lot of side-effects, because that means your immune system is doing something. We’ll find out in a few more weeks when I have my next scans if what it’s doing includes fighting cancer or just being annoying.

The last week or so at home has been a nice break from all the time we’ve been stuck in NYC lately. Last week my dad and I went to Canada’s Wonderland theme park near Toronto. It’s owned by the same parent company as Cedar Point and, as such, is included in my season pass. I didn’t feel as well as I was hoping but it was still a fun day and I got to ride Behemoth and Leviathan, a pair of roller coasters I’ve wanted to ride for a while. Then over the weekend Christina and I led our Youth Group’s end of summer overnight event, which included games, pizza, ice cream, a movie, and surprisingly exhausting laser tag—I’m still a bit sore from all the running. It’s been nice to have some normal life in between all the treatments, but I am glad to get back into New York City too. It’s like a second home, and I enjoy being there when I’m not stuck in the inpatient floor.